Me and my mate MS

As I sit here and join the rest of the South East in what my daughter calls the 4 tier family, I look out of my patio doors and see the grey sky and pouring rain. I wish you could only hear the sound of the sea and the hooley that is blowing.   We have been on Hayling Island for 1 week & 2 days and in true British style I’m going to firstly talk about the weather. It has been a real mixture of sunshine and showers, no I lie, sunshine and lashings of rain!   We arrived on the 12 th December and it was a real family effort, SMD popped down on the 13 th (we are in a support bubble together). Mainly to check out the flat but most importantly to carry out her duty of decorating the Christmas tree. The decorations on our tree are made up predominately of ones that have been sent to me from Denmark each Christmas 🎄. (SMD commented “you have no more room on your tree for Danish decorations, do you think our Danish family will start sending them to me ins...

Oh my days my emotions were rife on Monday when I attended my last official physiotherapy session. I was really delighted when Karen my physio assistant told me that as I would be coming back to Aylesbury every 6 or 7 weeks to have my haircut then she would make me an appointment to have physiotherapy (especially a stand). That is when the sniffling started, I would like to blame it on my menopause but in reality that would be a lie. I ended my session on Monday with a stand unfortunately it wasn’t for as long as I wanted as the girls seemed to want to bring me down, I did have time though to have one last photo taken. Back in my wheelchair I went out from the gym and into the atrium and that is where I was unexpectedly greeted by many of the CMSC staff ( all socially distanced of course), Catherine our Chair of Trustees then gave a speech, oh my goodness did the tears roll mainly because she managed to dense down the last 22 years of activities into a 5 minute speech...

  Wow it’s so exciting we really don’t have long to get everything packed up and sorted out. My week has been in the majority productive, starting on Monday with a physiotherapy session at the Chilterns MS Centre. On Wednesday I had a telephone consultation with the wonderful Dr.Viq Chamoun. He has always been about the well-being of his patients but at the same time keeps up to date with medical trials. I explained to him I was suffering with a bout of Trigeminal Neuralgia and had been prescribed Carbamazepine that immediately raised a concern for him as he knew exactly the other medication I was on and felt that I must be feeling like a complete zombie (he was not wrong). He than told me it could be treated in a number of ways that didn’t involve medication. That is when I had to admit I was moving out of the County. Thankfully he dictated a letter on the spot recommending my new GP made an appointment with the Neurologist where I will be living and then I fel...