Eight more sleeps to go!
Wow
it’s so exciting we really don’t have long to get everything packed up and
sorted out.
My
week has been in the majority productive, starting on Monday with a physiotherapy
session at the Chilterns MS Centre.
On Wednesday I had a telephone consultation
with the wonderful Dr.Viq Chamoun.He has always been about the well-being of
his patients but at the same time keeps up to date with medical trials. I
explained to him I was suffering with a bout of Trigeminal Neuralgia and had
been prescribed Carbamazepine that immediately raised a concern for him as he
knew exactly the other medication I was on and felt that I must be feeling like
a complete zombie (he was not wrong). He than told me it could be treated in a
number of ways that didn’t involve medication. That is when I had to admit I
was moving out of the County. Thankfully he dictated a letter on the spot
recommending my new GP made an appointment with the Neurologist where I will be
living and then I felt he went above and beyond telling me he wouldn’t
discharge me from his care until it had been confirmed that I had seen the new
Neurologist and I could ring him at any time. It is of great comfort to know
that he will be on the end of the phone.
Feeling
in a positive place I carried on with my list of things to do when Facebook
told me I had been tagged in a picture, I opened it straight away and there was our Christmas tree! It’s a bit of a surreal moment when your big sister has
arranged for something to happen when I and my hubby has been talking about it
24 hours earlier. We do and like the same things so I really shouldn’t be
surprised. All ready for us to decorate.
The
next job was to start the packing, my hubby will do all the big stuff next week
when he is not working but luckily I have my PAs so we could get cracking. I
had already started buying a few bits and bobs for Christmas so it made sense
to wrap the presents up first before packing them. I am sure anyone who has MS
and limited mobility will understand that we collect and store all sorts on our
tables so that was the next job sorting out my two tables and packing the
contents. It was also a sad day as I said goodbye to one of my PAs who would
not be coming in again before I moved.
Time
to relax I do love my oil painting by numbers on the iPad it’s a great way of detaching
yourself from the world, although it is my dear hubby who acts as my fingers on
this occasion.
Now
I have just eight more sleeps to go until we move and my last job of this week
was to phone the Social Services in the County we are moving to and get an
update on my new care package etc. Alas was there somebody who could tell me
what was going on? Oh no there wasn’t, I am sure (well I hope) I will get a
phone call next week with details of my new care package I do hope so as my
nerves will not cope with me laying in bed wondering if somebody is coming to
get me up!
Until
my next post …..
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