Me and my mate MS

Three weeks ago we took a long day trip to the Brecon Beacons, Wales. Before we left I realised that for the past four years we have either been in Aylesbury, driven down to Hayling Island, or up to see SMD in Surbiton. Now I needed to prepare for a 4 hour journey each way and how was best to manage my wees. It certainly is made so much easier by the fact I have a Supra Pubic Catheter. The thought of managing a long journey and having to investigate where the public toilets were before setting off fills me with dread, especially if many toilets have been closed down because of the pandemic. I decided that it was best to take a night bag with me, before we set off hubby attached my night bag, this meant the only person who needed to stop for a wee was hubby. Having an SPC has made journeys so much easier. I realise this is not the case for many, but let me share my years of experience when it comes too loo management. First of all I recommend that everybody who has a blu...

On Tuesday the 18th  of May, hubby and I celebrated our silver wedding anniversary. We decided to go out for the day, the previous week we stumbled across a sign to the Weald & Downland living museum (which is all open air). We pulled over to the side of the road and googled it. Of course because of these weird Covid times, a slot needed to be pre booked, and not of course before the 17th  of May when the next phase of the governments roadmap started. Well we didn’t waste any time and were pleased there was availability on our wedding anniversary.   Due to the nature of the museum we would not be able to access every part, I didn’t mind that and completely understood. We purchased our tickets which was for one disabled person and the Carer goes free, and that meant it cost a staggering £5! Well, hubby always said he was a cheap date (of course we didn’t have to pay for my mate MS as most of the time she remains out of sight). Not sure what to exp...

Starting a Blog at the end of what was an amazing experience may seem strange but you’ll remember Julie.    Checking in at any international airport counter is a process. We have all experienced the weaving left and right to the front of the queue. The mandatory security questions, bag weighing, handing over of documents ... from behind a tall counter.   On this day The Deans’ family were flying from Perth, Western Australia to Heathrow. This is a 17 hour flight or 14,500 kms. And this was about 8 years ago.    The four of us as a family were standing to one side. The emotions were high as we were saying our goodbyes until the next time remembering another reunion of two families who have grown so very close over 23 years. What we witnessed was human kindness rarely seen in our fast paced world.   In the same wheel chair that was now proven to cover rough Aussie terrain avoiding snakes and spiders plus roar down a path and do...