Now out of hospital, I could settle down and get back to my normal routine - wrong!
My usual run of appointments started, first being my visit to the respiratory physiotherapist. My neurophysiotherapist thought that a cough assist would help, I had tried using one last year when I was in hospital with pneumonia and my ability to have a good cough and got worse. At the appointment he decided to provide me with my own portable cough assist.
A really good compact size It’s also very easy to operate although for me I require hubby to set it up for me. The machine requires a mains connection and all I need to do is take a deep breath and then cough. The cough assist will give the reading of my peak flow.
3 seconds later it’s all over and all I need to do is continue by doing it twice a day, another thing to add to my routine.
No sooner had I come out of hospital my wheelchair buddy and sister was taken into hospital following a seizure sadly tragedy struck and we were told that they were going to have to cease all medical interventions. We brought her home and sadly five days later she took her last breath. We had the most beautiful celebration of life for her with a truly wonderful celebrant.
After the service we held the wake at a local hotel. Anyone that knew my sister would know her love of owls and everyone was able to go home with one of her owls as a memory.
Everything seemed so strange and nothing could have prepared me for the loss of a sibling. There’s no wrong or right way to grieve it is entirely down to the individual.
Weeks passed and the worry turned to my Dad who was fast approaching his 100th birthday, but sadly he was getting more confused I went round to see him, my sister and husband were doing a wonderful job of caring for him. Dad was clearly agitated all he wanted to do was go to sleep, Hubby and I left so he could rest after saying good bye. Twenty minutes later my brother in law came to tell us he had passed away. He was one month and two days shy of his 100th birthday. Nothing could have prepared me for this, 57 years I had always had him in my life. His Celebration of life was held on what would have been his100th birthday. A special day for a very special man.
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Night night Dad
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So what next, I saw my MS Nurse for my annual review, she asked me how I was. I surprised myself when I burst into tears and proceeded to blurt everything that had been going on. My nurse is lovely, she went on to say Julie what you have been through this year most people don’t go through in a lifetime and you have MS.So why am I telling you all this? Well there are several reasons firstly my brain fog is not too good at the moment and I use these blogs as a diary. Then it serves as a reminder that it’s okay not to be okay. Everything I do has an impact on my MS and maybe I am not as strong as I think I am. We all deserve a break.
A few days later hubby was putting me to bed when he saw a mark on my right thigh.
I decided to do a econsult the next day and I sent them the picture and straight away I had a text back from the doctor asking me to go to the pharmacy and take the photo with me. We went straight away, showed the pharmacist the photo, then I went into the consultation room where she asked if I was stressed as what I thought was a rash was intact shingles! I was prescribed medication which I had to take five times a day for a week.
All this in the first six months of the year to add to more stress the sale of our flat fell through and my Motabilty WAV had to go to the garage to be repaired. Luckily my policy gives me a like for like replacement vehicle.
Thanks Motabilty my WAV has been repaired and the replacement vehicle has been returned,business as usual for the moment.
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