Me and my mate MS

    I didn’t plan on writing another blog this week, but after the things I’ve experienced I feel I need to share the sort of obstacles I come up against. My week started with a visit to the flat our daughter used to rent. SMD will soon be starting her new job and she will be going into nursing accommodation. I have had a tough couple of weeks and have been feeling sorry for myself so I put my foot down (metaphorically) with hubby and daughter and told them I was sick of feeling left out because I am in a wheelchair and cannot get into her first floor flat. On Monday after I had had physiotherapy we went to Surbiton in my WAV sat in my manual wheelchair. About sixteen years ago I took part in the MS Challenge so I didn’t see why between hubby and daughter they couldn’t bump the wheelchair up the twelve steps to the flat. Delighted that we got into the flat without a hitch spent a couple of hours tidying it up and meeting the letting agent. I had been told...

  Every evening when I receive my care, part of my routine is to have pressure relief, I get this by being hoisted in my insitu sling up in the air. I call it hanging and I stay there for twenty minutes each day. I started being hoisted in December 2017 and it was during these pressure relieving sessions that I really started to get to know more about my carers. People’s culture and heritage has always fascinated me, I suppose it stems way back to my scouting days and being part of two World Scout Jamborees. Recently two of the carers have left my current care company and me being me asked if we could stay in touch, as a result we have had a fascinating conversation about traditional Namibian and Nigerian weddings. I am sure I can not be the only one interested, so I thought I would write a blog and share everything I’ve learnt. There is so much to talk about I have decided to split it into two separate blogs. So here is the first one which is all about a tradit...