Me and my mate MS

I remember going to the Waterside theatre on the 15 th March to see David Baddiel and finding there was a half empty theatre, not because people didn’t want to go and see him, but because the whole Covid-19 business had kicked off. I certainly didn’t realise the severity of the situation, on the 21 st of March it was Mother’s Day, Shannon told me they had a case of Covid on the ward and she wouldn’t be coming home, then of course on the 23 rd March we went into lockdown. Never have I ever experienced anything like it, we weren’t even allowed to go out for a walk. Living in a flat without a garden meant all we saw was the walls of the flat and my carers. I think most people know I didn’t cope too well and had to reach out to obtain some counselling. At least that lasted for 12 weeks and not only did I get help and some coping strategies, but I got to see somebody else. Thankfully, by the end of May restrictions had started to be lifted and by July I had a weeks holi...

My brain fog is exceptionally bad this week, I suppose I shouldn’t be surprised as my mate MS does not make friends with any infection that passes by. My little incident with the nurse and the catheter the other week, has resulted in an infection around the SPC site. Yesterday I started on a course of antibiotics and Fusidic acid cream. Enter hubby “have you taken your antibiotics this morning?” I don’t believe it, even when I write about taking antibiotics it doesn’t prompt me to remember that I should’ve taken one. So if you didn’t believe that brain fog was real, I can assure you it is.     I am so glad that my previous care company convinced me to write a blog, because I can assure you there is no way I could remember all the adventures I go on. Last week, hubby and me and my mate MS explored some more of this beautiful island that we live on, this post will try and capture some of the history we discovered while on the walk.   We started our wal...

I first started having carers in 2016 and back then it was one call a day, and that was first thing in the morning to help me shower and dress. In 2017 I was admitted to hospital for ten days with frozen shoulders. To get me out of hospital they packed me off with a bucket full of drugs to help with the pain and spasms. It was then that I was introduced to the world of hoists   Sadly a couple of months down the line and several visits from the district nurse, they discovered my pressure ulcer on my left ischium. My life became full of visits from either my carers or the district nurses, as my pressure ulcer was a grade four and went right down to the hip bone, and soon became known as Pesky Ursula. Easter arrived and so did time for hot cross buns and Easter eggs. The care company at the time explained to me that gifts could only be exchanged as long as they weren’t over £5, otherwise they needed to be declared. So when I got invited to my carers wedding and she...