Me and my mate MS

At the end of 2017 I went from using my manual Trekinetic to a Quickie Salsa electric wheelchair only to find that my specialist seating nurse felt that I needed something additional that would cater for my needs by helping my posture. In May 2019 I began the process of visiting an NHS Department in Oxfordshire, this took several visits over 6 months before it was completed. The seating has been really helpful and has lateral supports incorporated within it. Over the years my curvature of the spine has got worse and I need the specialist seating to hold me in place so I have a good posture.   Now I am living in Hampshire and being seen by the wheelchair services down here they have decided that my specialist seating needs to be remoulded. This is outsourced to a company called Delichon Ltd, their strap line is Performance Seating Systems. Hubby and I went to the premises of Hampshire Wheelchair Services which is just 25 minutes away from where we live. I was int...

A couple of weeks ago I made the decision that I really had to do something about my weight. I have written a blog before about this very subject back in August of last year. I have just re read the blog and wonder whether I should infact be writing about self control. Just before Christmas I had an appointment with a neurologist down here at the Queen Alexandra Hospital in Portsmouth, when we discussed my weight. Once again it all comes down to my lack of self control. He spoke to me about how sedentary I had become due to my MS, which obviously is no fault of my own, it all comes down to portion sizes. Weight is such an emotive subject as we all have our own way of dealing with it and what suits one does not suit the other. Last August when I wrote my blog about weight, food and MS I weighed 72.5kg (11.4 stones) and my physiotherapist told me I needed to lose at least a stone in weight. I am no longer going to the Chilterns MS Centre every two weeks and therefore do...

  It’s the 6 th January and the start of the New Year. Normally I know exactly what I want to write about, but I think this blog will be more of a diary entry as so much seems to have been going on over the last few weeks. Our Christmas 2021 was able to go ahead as planned, however it didn’t pass without our own precautions being put in place. If I was asked last year,  I would never have imagined lateral flow tests being done before the entire family met. Christmas morning Facebook was rife with photographs of families LFT’s. My brother and his family had arrived from Denmark and Switzerland several days before Christmas Day and were staying in a static caravan on Hayling Island. There were 16 of our family members that spent Christmas Day at my sisters house and boy did she feed us well. We even had a biscuit decorating competition in between courses, because I am unable to use my hands I was allowed to choose another family member to decorate mine and of ...