Me and my mate MS

Yesterday I had my first ever face-to-face neurology appointment since moving down here. When we moved down to Hayling Island back in December 2020 the neurologist from Buckinghamshire wrote a letter for me to take to my new GP. The letter contained details of the Trigeminal neuralgia I was suffering, and the suggested method of treatment. It was only a week ago that I had the cross sectional MRI scan, so I was dead excited to have this appointment knowing that the results of the MRI scan might be given to me as well. After waiting just 10 minutes I was called through to see the neurologist, That in itself was  a first  as  anybody who has attended Dr Chamoun’s  clinic  (the neurologist Buckinghamshire )  will know that it’s not unusual to wait for over an hour before  getting seen. Dr Isa Izzeldin   greeted hubby and myself with what I imagined to be a warm smile, I have learnt over the last 18 months to read peoples eyes and how...

I haven’t written a blog post for two weeks now as I have been very busy with some sight seeing in the local area and last week my brother and his wife were here on a holiday from Denmark. This morning I have been thinking about my blog, I try where possible to always come across in a positive manner and anyone that knows me well can vouch for that. I love living here on Hayling Island, being close to my family is very special to me however there are draw backs, my hubby’s mother took ill a couple of weeks ago and although yesterday we were able to travel up to Bucks and see her with SMD it never seems quite enough. By the time I had attended a meeting in the morning, then lunch we went to Bucks to see MIL (mother in law) we then took SMD home to Kingston, dropped her off and came straight back home, I was knackered. Finally into bed at 12.45am. Unfortunately sometimes I end up being tired and emotional, add the slightest problem into the mix and of course my mate MS/An...

I was asked the other day “What do you find to do with your days?” This question got me thinking as I was rather taken a back, am I being asked because I am disabled and unable to do much for myself? Am I being written off? It did make me chuckle because if the question was posed to my PA she would say that there is not enough hours in the day to get everything done and she is quite exhausted at home time! I thought it might be interesting from my point of view if I listed everything I have got up to since my last blog (when I say everything I don’t mean eating, sleeping and my toilet habits), I am finding this sort of thing quite cathartic. Beating myself up regularly is quite common, I often say to hubby “I don’t do a lot because I can’t” he always says to me “you’ve got to be joking, you never seem to stop”. So when I have my down days I can read this blog and remind myself how much I pack into my days. Back in March of this year I booked tickets to go to Vic...